Saturday, April 14, 2012

Oh My Defect!

"Your Daughter has a heart defect."  The words you never want or expect to hear at a routine ultrasound.  But those are the words we heard that day!

Let me back up to the beginning.  

September 8, 2011 we got our first positive pregnancy test!  We were so excited to be adding a new addition to the family!  

September 28, 2011 we had our first OB appointment and found out that I was 6 weeks days pregnant and my due date was May 18, 2012!

November 9, 2011 we had our first visit with our high risk OB due to the fact I am a little on the heavy side!  They did an ultrasound and told us that we had what was called an amniotic band.  Basically its a piece of the amniotic sac that is floating like a string in the fluid.  If the band does not go away it could wrap itself around the baby and cause limbs to be amputated or worse fetal death.  We were told to come back in eight weeks to check the status of the band!

December 23, 2011 we had an ultrasound at our Midwifes office and we found out that we were expecting a Little Girl!  I was super thrilled since we already have a little boy!  The other good news was that they could not see the amniotic band but still wanted my high risk doctor to monitor it!

January 25, 2012 we went in to check on the amniotic band.  Thankfully it was gone.  Then the words that will change your life "Your Daughter has a heart defect".  I was in complete shock!  I did not know what questions to ask.  I did not know what to think or do.  Our daughter was diagnosed at 23 weeks 5 days gestation with a ventricular septal defect (VSD) which is a defect in the ventricular septum, the wall dividing the left and right ventricles of the heart. Also known as a "Whole in the Heart".  At the time it was measuring 3mm which is on the small side and could not be repaired surgically but would need to be monitored.  They told us that one this size had a good chance of closing up before she was born or shortly after birth.  But other than that she was perfectly healthy and growing like she should.

March 1, 2012 we had yet another ultrasound with our Midwife.  They couldn't see the VSD!  But again still wanted me to follow up with my high risk doctor.

March 28, 2012 we went for our follow up with our high risk doctor.  Had yet another ultrasound.  Again we did not get great news.  The whole has not gotten smaller.  It has gone from a 3mm to a 4mm.  Now they are saying that if it doesn't close after she is born and is having complications she will need surgery.  

April 13, 2012 I am now having weekly ultrasounds and non stress test with my Midwife!  Baby "C" is weighing in at 5lbs 15oz give or take a pound.  And she is doing good!  We wont know anymore about her heart until we go back to our high risk doctor on April 25.  Please keep our little girl in your prayers!

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